Hi Nathan,
Cislpatin and ethyol usually have the opposite effect and make blood pressure go down. However, it's not unusual to have fluctuations in blood pressure because the treatments are stressful. Do you have a blood pressure monitor that you can check on this at home? They're easy to use and you can see if there are ups or downs at different times. Could come in handy.

Are they giving you anything like Ativan before treatments? That was the only way that Jack could even go in the mask. It could help with your blood pressure and also nausea.

Yes, it's normal to have leaking from the cap of the PEG tube. Think about it as a build up of pressure that sometimes escapes like steam when cooking. After we had the cap changed a couple of times we just taped the end of it and that seemed to work.

What is the burning sensation you are talking about? Is it coming from the tube, your stomach, or the skin around the tube? Is you skin irritated?

Jack had ethoyl and felt it really made a big difference in both preventing severe muscositis and protecting his salivary gland. Here's the thing - you MUST follow the instructions on the pre-routine EXACTLY, and take the zofran daily. It's critical to drink - or pour into the tube - 2-3 quarts of water every day. You will find many people who have not been able to complete the series of ethyol shots due to severe nausea so don't fool around with that. Stay well hydrated and take the zofrann ODT.

During chemo radiation Jack could only tolerate PEG tube feedings using a drip bag that had a platic wheel on the tubing to control the flow. It's called a kangaroo bag and hangs from an IV pole. Are you using a liquid formula or blending food up? Watch the consistency if you're putting things in the PEG tube.

The good news is that you will get through this.

Regards JoAnne