I finished radiation in November and by February I was eating, drinking and feeling lucky. Then I developed trismus. There's an outfit called dynasplint that provided an apparatus to use to stretch my mouth. However the pain was so severe, in the joint at the corners of my mouth, that she told me to quit using it. I have plenty of pain meds but am trying to use them cautiously.
Has anyone dealt with this? When it began, I could open to 20 cm. Now it's about 5 tongue depressors.
I had another PET today and it appears the cancer is back! So I will be having a biopsy on 7/28. Thanks to anyone who can give me some encouragement.

Nancy F 66 Tongue cancer T4 N1 M0 Completed 2 3 week sessions of chemo. Shrunk tumor 40%. Then Cisplatin only, 2 weeks on and 1 week off during 7 weeks of radiation.