John, Had PEG removed 7-6-09. Sensation of hunger but no real enjoyment of food. Stomach has obviously shrunk and I'm full after eating about 1/2 of what would have been normal intake.
Eating now out of necessity and the wife is bugging me to eat MUCH more. OK, I know she's right but I have no desire to eat like I used to. A shame too because I used to do most of the cooking and I really enjoyed it. Taste buds are only ~40-50% recovered. "Mouth feel" of food is an issue for me also. Many foods feel "grainy" so I avoid those foods that elicit that sensation. From what I've been told (mostly by my wife who reads this message board) and people I've spoken to, I'm looking at about a year till things get back to "normal".
Wanda's husband John.

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2