Thanks so much everyone. Our onco changed his tune a bit once he saw Joe - told us not to give up hope. Joe cannot have any more surgery or radiation in his neck, but chemo is still on the table. So although we have lost two important weapons, we still have one left.
We do not know how far this has spread - we are afraid because Joe has a lot of pain not only in his neck but in the back of his head. The scans are on Monday, and hopefully by Tuesday or Wednesday we will know more. The oncologist couldn't give us odds or his thoughts on how long Joe will be around without seeing the scans.
So today - he is back in the cancer center, getting chemo (taxotere this time -- may also add
Erbitux). The oncologist said that this drug should hopefully extend Joe's life and improve the quality of his life by keeping the cancer from growing. He also said that he himself had one patient who had a very similar situation to Joe, who was down to doing only chemo, and the cancer actually went away for good. And he has another patient right now with the same cancer which spread to his bones and lungs, and he has been able to go about his life for the last 2 and a half years as normal, treating it almost like a chronic condition. So there is still hope. Also, the oncologist is very much in favor of sending us to one of the big cancer centers to see if we can get Joe on a trial. We are leaning toward MD Anderson since they have a lot of cutting edge gene therapies that look promising. We have to wait until the scans are in, and then they will get everything together for us and send it down. So right now, I am just sifting through all the trials at all the major cancer centers, to see what I can find.
Thank you so much for all of your thoughts and prayers!