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| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Janet, get as many rs opinions as you need to be comfortable with the decisions. I had opinions from 3 Hospitals and one of them was a CCC before I had a neck dissection at Ohio State James Comprehensive Cancer Center. I was told than my margins were 1.5 there and the Dr had gottenn all of the Cancer and I was clean. U still hurt and the Dr at a Local CCC told me I needed Rads and chemo and this wa before I went to Ohio State. I had biopsies a couple of more times and then the 3rd time, the Dr at OSU told me the cancer was back and took more of my tongue. He then said I needed rads and chemo. Needless to say I wanted the Dr locally to take over for my treatment then at Wheeling Hospital in the CCC unit. Things had gone too far and I had to have my teeth removed before rads and chemo and to prepare me for rad seed implants in my tongue.THey took the teeth and then began the agressive month of rads and chemo and then 2 days after they treatments ended, I was adkitted to the hospital for implants. For this I was put in a coma state and taken to the OR where they went up thru my chin and put pods or whatever they re called, then to Xray to be sure they were in the right ae=rea, then back to OR where they put the rad seeds n and put me in isolation. Supposedly for 3 days , but then the=y couldn't wake me. On the 7th day I came to . I was on my way to a rest home the next day.. that's when they started to call me their miracle patient. All of this because I was told I didn't need rads or Chemo. Go for whatevr will make you comfortable, I say.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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