I have many scar tissues and believe me it hurts so bad at times, you feel sure something drastic is going on. It feels at times like it is my tongue coming out of my mouth so therefore OI go find something strenuous to do until it lets up some.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here