 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | B,
Brian needs help and if that means getting 10 opinions then do it. Don't worry about stepping on anyone's toes. I remember being so weak and also not being able to talk that I wrote my wife a note and said "I need help, I can't do this by myself". She immediately took me to the hospital and I stayed 3 nights but it saved me. That was 2 weeks after my Tx had ended. I hate hospitals and I'll never forget those 3 days/nights but I did get much needed attention.
Keep us posted.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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