Good luck with all of those appts. and tests!  I will be going through some tests as well soon I hope. I see the ENT on the 18th.  Monday I see the dermatologist because now the other side of my tongue has white patches just like the left side when it started out.  I have burning tongue and throat also.  I sleep 14 hrs. a day and just can't seem to wake up, also chronic diarrhea.  Hope they find out what's going on here.  You sound like a real trooper and it gives me inspiration.  It's tough to deal with drs and tests all of the time.