Mark,
Your approach sounds very creative. I am 7 months out from radiation and still have my PEG, although I only use it about once a day now. I drink a lot of Boost Plus and try to eat more, but can't seem to eat enough to gain weight. I had my esophagus dilated three times and it seems to be opened us sufficiently, but when I do eat I can only seem to eat small portions. I have tried many things...cheese cake, grilled fish, vegetables, soups, oatmeal, pasta, rice krispies..but eating is slow, difficult and , I repeat, hard to eat much volume. I have found that I can finally drink milk shakes and smoothies..that I just could not get down a month ago.
I would like to get rid of the PEG and eat more, but I am unsure if it is my fault for not trying harder or if things are moving along as they should. I could call the dietician at MD Anderson...that place never follows you up on their own..they leave it up to you to contact them.
Any advice? Brian, why did you keep your PEG so long?

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.