Here are the details from the gal I'm posting on behalf of:



I don't have Thrush. Acid reflux is not a problem.

I have had nausea for over three years-even before the cancer was first detected. Burning mouth started after my surgery in 2007 when my surgeon had to remove one of my saliva glands to get to the cancerous lymph node behind it. There was no cancer in the saliva gland.

I had squamous cell carcinoma of the buccal mucousa (inside of my cheek). In March 2006 they removed the primary cancer and a few of my lymph nodes. The cancer was then stage 1 and had not spread beyond the original site which was about 1 centimeter in diameter. No further treatment was warranted at that time.

One year later in March 2007 cancer was found in one of my remaining lymph nodes on the right side closest to where the original cancer occured. Chemo and radiation went from May until late June 2007. No cancer has been seen since then, but the burning mouth and nausea continue. I just had another PET scan last month.

My doctors don't know what is causing my problems. I have tried every nausea medication that exists and none help. I tried mouth washes, Biotine, and a prescription mixture mouth wash containing an anti-acid and a pain killer. Only temporary relief.

I went to a GI doctor and she did blood tests and a scan of my GI tract. Everything was normal. She did not know what was causing the nausea. She said some nauseas are difficult to treat because there are many causes for nausea. She suggested various teas. I tried them but no success. I also tried accupuncture and holistic medications.

The nausea disappeared late last year for a couple of months but unfortunately has returned. Some days are better than others...

Thanks for your help.


T1N2bM0, Stage IV squamous cell cancer of left tonsil and 2 nodes, treated at Stanford. 44 yo at Dx in 2000, tonsilectomy, radical tonsilectomy/neck dissection, cisplatin X3, 30 rads.
Minimal side effect of Tx: some dry mouth.
Significant side effect of Tx: I'm alive!