 Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 27 | My experience with mucositis during and immediately after treatment was similar to that of kme05.
It has now been 20 months since I completed treatment. At a routine follow-up exam yesterday my ENT said there was still a lot of mucositis and the damage can be permanent. He has seen improvement up to 2 years post treatment.
Now I am able to eat almost enough to maintain my weight. I drink one can of Jevity 1.5 as a supplement. Eating is hard work and I don't have much taste. Soft, bland foods work best.
Bottom line, so far, I am cancer free. Life is good.
marilyn
dx: Stage 3 T2N2aM0 Left tonsil, base of tongue, 1 left node. HPV positive.
tx: Tonsilectomy (left) then Cisplatin x2, Erbitux x7, IMRT x35
Phase 3 clinical trial. Completed 6/28/07
| 
