Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Tim,
I asked all my cancer docs and beyond the recommended checkups(which won't prevent it either) and no tobacco(I was a non smoker anyway), they all agreed there was virtually nothing in my control.
I obviously asked what my chances of a reocurrence was and they said percentages are for doctors, not patients. Telling me statistically I had a 20% reoccurrence risk means nothing to me if I get it again and likewise if I don't get it so let it go, they said.
Being a CPA it's hard to forget percentages but I guess what they are trying to say makes sense.
I have been developing a list of questions in a survey format that I would like to pass by Brian and Gary to seek their permission to ask all posters who have had a reoccurrence to complete. I know that it would not pass scientific standards but I do think the tabulated results would be of interest to all of us.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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