at five years they usually stop monitoring and recording survival stats so don't let that number scare you. it is simply that, a number. as that commercial says there is no expiry date stamped on your foot, so we enjoy each moment we are given, knowing we are not promised even another day ... but we set our mind to living long lives and set out to do just that. NEVER accept a checkout time from anyone other than your maker... because frankly none of us know how long we have with or without a diagnosis.

For instance a friend of mine was told he would not make it another year ... they figured 6 months max ... that was 2+ years ago and his reports are more positive than they have been for ages ...

Waiting is never easy but do know we are here wishing the very best for you.