Thank you all who have contributed to help me and others on this forum. I need your help again.

I have my second appointment with the ENT at MCV 12/18 (first was 10/23). I was able to finally get through to HIM on the phone last Thursday. He said he "had staged� my cancer (SCC-Floor of Mouth) during my first appointment, using physical exam only (looking into oral cavity, palpating neck nodes, no endoscope), as T1N0. I told him that my chest x-ray was clear and he said M0.

I asked him about scans and he said he would only do a scan if I select the surgery option (I was given two option, do nothing and wait, or surgery). Directly prior to the surgery, he said he would do a CT. He explained that the surgery he was talking about (I don�t know what you call this particular procedure) was a removal of tissue around the original excised 2mm tumor site (a minimal 2cm diameter of tissue removed) to determine if the margins are clear. I forgot to ask how they close the surgery site. Graft?

When I �pressed� him about having some sort of scan before my 12/18 appointment, he said he did not think it was necessary (I really almost �begged� him to order a scan, if for nothing else, for my own �peace of mind�). He said, �OK, we can do a CT scan, I don�t think we�ll learn anything, and I�ve been doing this a lot longer than you have.� I accepted this with grace, because I got what I wanted!

I am going to get a second opinion and I am starting to work on that NOW! I have I gotten information about Duke, thanks to the kind folks on this forum. I am actually closer to Johns Hopkins, which is ranked higher. Could those of you with experience at JH give me any advice or recommendations? I�m pretty sure I need to see an ENT, any recommendations? PMs are welcome!

I hope I can schedule an appointment for the second opinion soon, but because of the holidays, I doubt I�ll be able to get one until January.

Thank you kindly!


Catherine

2mm tumor excised 09/23/2008 (floor of mouth)
SCC (superficially invasive, well-differentiated)
Stage 1, T1N0M0
01/2009 and 01/2010 - PET/CT clear
Four and 1/2 years - NED!
"Detection can be easy, treatment is not!"