Thank you for your replies. The Pain Specialist we saw Friday put him on Methadone and Neurontin beginning with low doses and working up. He is still taking Percocet as back-up. Last night he actually slept 3 hours in a row which he hasn't done in months. The Dr. is going to run some tests on him this week because there is a small lump in his cheek now. His pain is a mixture from the surgery, fluid pressure and now a possible new tumor. I see Kyle rubbing his face the same way he did when he had the tumor 6 months ago. I was hoping he'd at least get a break from this pain before anything returned.
I noticed some replies were from people who lost loved one's recently and I'm so sorry for your loss. It seems like such a hard thing to watch and I fear I might be heading in that direction. I do not know what to say to my husband this week if we are told it's back already. Thank you all for your suggestions. I may ask more questions shortly.
Sincerely,
Tamara (Kyle's wife)