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#8154 08-24-2006 02:55 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Gail,
I agree the new regs pose a lot of travel problems for oral cancer survivors. I have flown twice since rad and chemo and rely very much on biotene gels and a spray I use for extra mouth moisture. Water alone would not cut it for me. I'm actually going to a conference in DC in a few weeks and have decided to drive just to avoid the hassle.
The there's the fact that I still get most of my nutrition through a PEG tube--I wonder what they do if you have to carry your liquid food with you on the plane--for a 15 hour flight especially you'd have to have *something* to eat. I hope eventually I won't have to have the tube, but I still doubt I'll be able to eat what the airlines would serve so what are people wityh dysphagia supposed to do? I really hope someone is thinking about this. I'd like to travel abroad eventually.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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