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| Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Thank you all for the kind words! I almost forgot to mention that I completed training as a hospital chaplain and start an internship as soon as I get over this short term hump at work. I also participated in a couple of health fairs representing OCF. I was invited to another in the inner city of Dallas around high-risk people for oral cancer sometime in the next few months. I (actually Susan!) made up a board of many oral cancer "victims" from the website and play both the Jack Klugman and the Blythe Danner PSA's. Thanks Brian for giving me an opportunity to give back just a little bit.
Somehow in this world, I have found myself face-to-face with cancer survivors at various stages of their journey on a very regular basis. The stories go on and on but the common theme has been steadfast. I have had many friends and family battle cancer and so many have reached out for a guiding hand, a shoulder to lean on or just a pair of ears to sit and listen. People I didn't know have come to me telling me how I have inspired them and have even asked me to walk with them through their journey. I am touched each and every time.
I will drop in from time to time but know I will always carry all of you in my heart and thoughts throughout life.
I still would like to make some type of get together soon.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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