 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Lorie,
I am so sorry to hear the news of Don's passing. I know it has been so tough and for such a long time now. Even knowing how things were progressing and what was inevitable, nothing can prepare you for what you had to endure and are still aching from. I am hoping that your heart will always be filled with love and I am asking for peace and comfort for you and the entire circle of family and friends that you and Don shared. Even though my heart is sad, I am so glad that Don had the opportunity to pour out so much love in his final gift to you. May your garden always grow strong and may the beauty always fill you with his love.
I offer my sincerest condolences and please ask if there is anything I can do for you.
With love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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