"OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | During surgery and prior to Chemotherapy and Radiotheapy in 2007 I had some "suspect teeth" removed, a couple of wisdom teeth and 1 crown. Both my dentist and the oncologist at the CC told me that my teeth and gums etc were very healthy and everything looked good and my mouth was ready for the treatment. Unfortunately, a short time after the r/therapy and following alot of pain and discomfort it was diagnosed that I had mandible Osteradionecrosis....
After loads more scans, xrays and 30 Hyperbaric "dives", in April this year I had no choice but had to have nearly all of my bottom jaw replaced with bone from my hip and as a result have had nearly all of my bottom teeth removed, only 3 molers remain.
So, in my case all the preparation still didn't save me from that nightmare and the now having to wait about 12 months after the surgery for my jaw to heal properly so as I can get teeth implants and another tongue reconstruction.
I still have a PEG tube and I can't wait to be able to eat some descent food again....
This forum has been a life saver for me and knowing that there are so many people who can relate to what I any going through is a huge help.
Karen
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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