Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Karen:
Welcome to OCF. Im sorry you have to go thru this. There are many people here who have been thru this type of procedure who will answer your questions. Im sorry that I dont have experience in this to help you.
Is your husband being treated at a CCC? Does he have just the radiation oncologist or also a medical oncologist? Chemo works in conjunction with the radiation. Most people here including myself have had chemo along with radiation to get the best results. I also would be concerned that you were told by a surgeon that he doesnt need chemo.
It sounds like your husband is going thru heck right now. When talking to the doctors its a good idea to take a notepad to write down questions and their answers, taking someone else along helps too.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |