The waiting for results is almost worse than the waiting to get in to have the biopsy! You'd think the pain from the biopsy would take away the worry and what ifs that keep flying through my head!

The biopsy site is healing very well - so I guess my hypothesis that maybe the non healing ulceration was due to radiation damage causing my tongue to be slow to heal might not have been a sound one. Sounded good at the time!

The doctor's office called yesterday and tried to schedule me for 8/5 to follow up on the biopsy results and check on healing of the biopsy site. Apparently they decided to unilaterally cancel my previously scheduled appointment for the 29th because "the doctor said he wanted to see you in two weeks." I pointed out that the doctor wanted to see me the first day he was back from vacation and that the 29th was actually 12 days out and the 5th was 19 days out. Clearly my appointment on the 29th was closer to the two weeks he had written in the chart. Geeze! I got ugly and impatient and told the clerical person that it was absolutely inappropriate to decide to cancel the appointment that I had scheduled without consulting me, and that I was not going to wait until August 5th to come in. She snottily told me that she'd have to "check" and call me back. After another call where she again tried to railroad me, I told her to go back and "check" again and call me back with my appointment on the 29th rescheduled. She called back about 5 minutes later and sheepishly told me that the appointment had been put back into the system.

I really love my doctor, but really hate dealing with the office. At least I was able to hold firm and insist that things be done the right way - I worry about all of the patients out there who aren't able to advocate for themselves or who don't know that they can or should.


Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!