 "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | NewYorker,
Can you call the doctors, or others on the health care team, with follow up questions? My team hands out their business cards liberally to me and my caregivers and are very, very open to phone calls with follow up questions. They are very aware of how overwhelming both this disease and the treatments are and that there will be follow up questions.
Don't be shy! Ask questions, make lists - that's what the medical team is there for.
- Margaret
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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