 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ditto what Gary said re the ER. I had to get hydrated twice in the ER and they are just not mentally equipped to deal with our Tx. First you have wait the customary 2 hours to get a bed. Next you have to (or your caregiver when you're to weak to talk or give a damn) explain WHY you need hydration which is way more difficult than it sounds. Then they drip the solution in at like 1 drip per hour and then they said I couldn't leave until I pee'ed. If I would have had a knife that doctor would have had a real ER on his hands!!
So the moral of this nightmare is to STAY HYDRATED. Do not fall behind. Drink at least 48 ozs of water each and every day or you to will waste many hours dealing with ill aware good intentioned people.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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