Yes I am finding that out quickly. This too is a long process but it is the road to recovery. My family keeps saying, well, you look better than last week. Or, Are you feeling better now? OH, and my favorite one of all, You were looking half dead there for a while. Good to see you are shaping up and gaining weight.

I know they mean well, but no matter how much I tell them the real deal, they seem to forget what I just told them last week.

I go out with my son who I tell you, for a 17 year old, really has been a great help to me. So we go out and since my tongue is burned badly, he talks for me when people ask me how I am. He tells them the lowdown and then when they do not ask me yes or no questions he gets upset with them. He says..Dad can not TALK, his tounge is burned.

Point is, frustration is high for all concerned. This too shall pass, but passing this point like a gentleman and can be taxing. It is important to realize that education is the key here. Educating how this cancer can affect you and all your loved ones.

So, even though I eat through a tube and my tongue hurts right now and a T-Bone steak is not in my near future, it becomes increasingly important to educate those who do not know or understand what we go through and how to handle these situations.

Hence the reason for this forum and my blog which tries to do just that. Help those understand what they do not.