Hi everyone,
Just wanted to update everyone on our visit to the RO today.

Tracy, thanks for the information. Sorry to hear
about your dad. I know radiation can be really hard on you when you are older.
Is your dad having IMRT or conventional radiation?
My mom just had her 5th day today. So far she seems to be doing ok. I know things can change quickly. We are just trying to take things one day at a time. It's very hard to do sometimes.
I wish you and your dad all the best.

UPDATE

I always look inside my mom's mouth when I see her and today I noticed that on the right side she had a white coating on her tongue. I wasn't sure if this is caused by the radiaiton or was she developing thrush in her mouth. She doesn't have any pain from it.
We were scheduled to meet with her RO today but he was off sick, so they said. We met with one of the other RO which I did not care for. I felt he was somewhat rude and could hardly understand what he was saying by his accent.
Anyhow he gave her a script for a swish and swallow. It's a combination of
benadry/nystatin/and an antibiotic.
I asked him if she was developing thrush or was this caused from the radiation. She's had only 4 treatments. Would she start to get an infection so soon??? Anybody else experience this???
He basically said it was a combination of that and the fact that her mouth is dry. From her surgery. He never really gave us a clear answer.
He told her to rinse her mouth every hour with salt/baking soda and water mixture.
Then I went on to find out that my mom has been having pain on the opposite side of her cancer(left side of tongue) in her ear. She has kept this from me for 2 weeks. The pain is on the left side.
She said the pain started about 2 wks ago and went to her medical Dr. and he just cleaned the wax out of her ear. She said the pain did not go away and was waiting to talk to the RO today about it. She said she feels like she has an ear ache and a little bit of pain on her tongue on that same side as the ear. This pain started before she even began radiation, so it couldn't be caused from that.
Does anybody have any ideas why she would be having ear pain on the opposite side???? The white coating on her tongue is just on the right side of her tongue were she had surgery with the skin graft.
We asked this RO about the pain and he told her to go to her ENT dr. (so not much help from him).
So we made an appointment with the ENT dr. for this Thursday. The RO did not even look in her ear. He felt around her neck. I had to ask him if he felt any enlarged lymph nodes. He said no.
I don't know if this thrush could be the cause or what. Or if something else is going on.
They did a CT right before her surgery and everything looked clear. I just hope it's not any cancer going on. Or could it be nerve related from her surgery. It's been about 12 weeks since her surgery. It worries me.
Any information from anyone would be greatly appreciated.
Michelle