Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Hi Bob, you and I have about the same time since we finished our treatment (my rad/chemo ended early June 2005). I have bad jaw cramps just about very day although they don't last long (maye a minute or two at the longest). I don't know if this is similar to what you say is "jaw pain". It's more like a muscle cramp in the jaw than chronic pain.
The pain doesn't sound quite like yours but similar. It usually starts on one side of my jaw and the muscle that cramps is kind of in the lower corner--the cramp is so intense that if I didn't pull against it it would have me grinding my teeth together. Even when I do pull against it (by trying to force my jaw open) I can barely open it.
These cramps have definitely gotten worse in the last year or so. Fibrosis from radiation can keep happening for years after radiaiton from what I have read so it's frustrating but maybe not as unusual as it seems like it would be.
I also get cramps in my shoulder. It is on the opposite side of my neck from where I had a neck dissectionand a very good physical therapist I went to a few years ago told me that is to be expected because they did remove some muscle in the neck dissection. I only get these cramps when I do not stretch my neck enough. I have a set of exercises from the physical therapist I should do every day but when I get busy I don't. I have one of those neck wraps wih rice insode that you put in the micorwave to warm and I find it helps GREATLY when my neck gets stiff or crampy.
I hope this helps.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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