Yes I agree that the location is not typical of what they have reported as typical HPV primaries but given that I have been told the major causes of Oral SCC are Tobacco and HPV, I am just curious of how she came about saying that she suspected she was HPV negative.

While it may be true (now) that HPV+ SCC is treated the same as HPV- SCC that might not be true later as more details are compiled about HPV. My RO made the statement to me that had he known that I was HPV+ he may have treated me differently than he did. I still have not gotten a chance to ask him what he meant but hopefully I will remember the next time I see him. I haven't seen anyone that posts that they are HPV+ being treated any differently and I'm not sure I would want to be the first guinea pig either but his statement was made.

As everyone that reads my posts knows by now, I want to increase the awareness of HPV. It caused my life to be turned upside down and I had never heard of the Oral connection until it was mentioned on this very site. Recent studies have also indicated that there may be a better Tx outcome and a lesser chance of re occurrence with HPV+ SCC so if someone tests positive for HPV that may give their mental outlook a boost which may help them throughout their treatment and recovery. Right or wrong I felt relieved that I knew my cancer's cause and it eliminated a nagging question lurking in my brain. I also felt relieved when the results of the study were published so I want every non smoker to be aware of HPV as potential cause to their cancer.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.