Well thanks! I will be sure to check out the restaurants in chicago. I actually lived there for 2 yrs awhile ago but haven't been back in about 6 yrs!
Anyways- My life has changed but it certainly isn't a miserable existance and I want people to know that - especially anyone facing the reccomended treatments for this disease. My Drs at UCSF also felt I had no choice but to do this radical surgery so that I could have a very good chance at a cure so I can live a long time. It doesn't matter if they can save your tongue but then you end up dieing form this.
From my limited experience so far w other patients I've been in contact with is that most of the time it seems like they end up having to have the surgery and at that point the cancer has been floating around your body for awhile. After radiation and chemo surgery is a lot harder on your body. The surgery was really rough to recover from without having gone through all that- then 3 weeks afterwards I had to start right up on chemo and radiation which hopefully took care of the rest. That is the reccomended standard of treatment that is the most successful as far as I have been informed. I hope that Greg responds 100 percent to his treatment choice I really do. but his experience isn't what ususally happenes and his choice of treatment iswhat the medical community for head and neck cancer has neccesarily agrees upon as the best option.
anyways! Thanks so much for your positive response! I am really happy that I don't have a tongue now- Never thought I'd say that- but it had a cancerous tumor in it that almost killed me and I've figured out how to live a full life without it so that I can live to be a old lady!
