The biggest thing I notice about my taste or lack of it is that things just plain don't taste "right." (I'm a year out of treatment) It is so difficult to describe - but it seems that complexity is gone. What I taste seems to be in "pieces" and the tastes don't blend like they are supposed to. The simpler the food (in terms of the less processed) the better - peas taste like peas, green beans taste like green beans - but adding in multiple combinations at one time starts throwing my taste buds way out of whack. So, for example, a gravy tastes weird to me...I taste multiple different components and they don't all blend together into "gravy" taste. I also seem to be tasting chemical tastes very strongly - I've stopped drinking tap water because all I taste is a very strong chlorine taste....no one else in family can taste it, but it is overwhelming to me.

I also have stopped eating any meat at all - the taste of meat is absolutely fetid to me. Pardon the description, but any meat tastes like something rotten in my mouth. I've tried on multiple different occasions to see if it has improved, but as of Sunday it was still really disgusting.

All in all though, I'm not complaining. I do taste SOMETHING at least - which is far different than during treatment. Veggies and fruits all taste good - and I find that those are the foods that I most looking forward to eating.


Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!