 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Donna,
I am so sorry to hear how painful the situation is for you. You are saying exactly what your heart feels and what you are saying to us is what you should say to Eddie, his sisters and your daughters. The things I am hearing you say is that you are at a loss for words, that everything you want to say feels so empty but you want them to know so bad how much you love them and how much you are struggling with it all. Tell them you wish there were words you could say that would make their pain go away but there just aren't. Life just doesn't make sense sometimes and no matter how hard we try we don't know why so many people have to suffer from this horrible disease. Acknowledge that it affects all those that love someone when cancer takes their life.
Maybe sit down and try to think of the good memories and some fun things about all the interrelationships of the family. Hugs to you and everyone. There is nothing easy when it comes to cancer.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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