Hi Everyone,

Again we've been kind of blindsided. My doc at Hopkins had his people read my PET and CT and they feel there is another spot in the back of my neck that the radiologist here didn't see. So, now we're up to five areas. My doctor is suggesting some chemo first before surgery to try and shrink the ones far back in my neck so they will be easier to reach during surgery and it will cause less damage to me. He is very concerned about me losing anymore function. He hasn't hinted at nor even started a conversation with me about this being the end or that it was time for me to consider letting it takes its course and I have told him all along that i wanted to know if that time ever came. He is positive and encouraging with me and feels I stand a good chance to get this under control. I go May 1st for the biopsy's and we will set a definitive plan.

Been a rough couple of days............getting the new scan reading, 3 year old grandaughter in ER on Wed for dislocated shoulder, 18 month old in same ER for two stitches in her lip from a fall AND it's my 17 year olds JR/SR prom on Friday and I volunteered to take pictures before I know about all of this new cancer crap. Busy day tomorrow, hair appt. at 12, make up appt. at 2, picture taking session at 5 then off to the prom in a really cool limo that a bunch of them rented. She's so excited, the boy she wanted to ask her did, he came to the house with roses and candy a few weeks ago to ask her if she'd go with him. I might be "sick" right now but there sure is alot of living going on around me that I'm such a part of!

Take care,
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.