Ok - Friday I ended up with Dan's chart for about 45 minutes so I read everything in it. 99% of it I knew and had made notes on and/or had copies of myself. But the one thing that surprised me was the PET Scan results. The stuff they told me - lungs clear, etc. normal uptake in the areas where the surgery was (scan only a few weeks after). But at the bottom it listed a metabolically active node... I read this after seeing the MO(while waiting during chemo). I walked back over to the doc "area" and he was gone for the day. I believe, based on what I read, that a metabolically active node = cancer. And I know they only took out 30 nodes (4 positive)... so I guess this means there are more?? And are nodes like tumors that they have to be so far along, etc. before they even show up. So this would increase the likelihood that there is more metastases? And why haven't they told us this? This particular node I am now concerned about is in the radiation field, but still. So I know you guys can't dx him - I am mainly just frustrated and thought I would "share" my thoughts.


Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!