[quote=minniea]Hi Everone,

I can always count on this board to come out in droves when I need some inspiration! I haven't posted much lately because I've been busy and because I just needed a break............but I'm back and need your support again.

My doctors appointment went pretty well, I really love Dr. Koch, he's takes the time to sit and talk to me and never makes me feel like a "patient". And he gives it to me straight, which is how I like it. He feels I have a new cancer on my thyroid, one that is not related to my previous cancers............go figure. God must think I'm one strong person! This would explain my voice being so raspy and weak for the past 10 days or so, we thought I had a lingering cold. He also feels the node he's been watching since Oct. needs to come out. So, I'm having a CT scan with contrast done on Tuesday to get more difinitive sizes, locations, etc. and then he'll make a game plan. Looks like surgery for both areas. I just pray that I heal well after the surgeries, I have so much going on right now. I don't want to walk around looking like frankenstein. My daughters prom is the 25th and I'm pretty sure nothing will be scheduled before that. Last softball game is May 1st, so I won't have to miss to much. My girls school gets out end of May so the timing is good.

Thanks to all of you for writing, it always makes me feel stronger.

Love to all,
Minnie [/quote]

Minnie,

I am so sorry to hear your news and especially to see you and your family having to worry some more. Keep in mind that the risk for thyroid cancer after radiation is pretty high and I will especially pray for this. It sounds so stupid to pray for cancer but thyroid cancer from radiation is easily treatable.

I have had the raspy voice for 3 weeks now, tests for strep and all negative, spent 2 hours in an MRI yesterday, have PET coming up Friday and I think my wife working at the cancer center has proven to be more of a burden for me of late! She even had my oncologist calling my mobile phone to order me to come in and get it checked out. The ENT stuck his funky scope up my nose and examined the vocal cords and everything. Clean bill from him, although pretty high!

Now that my Kansas Jayhawks finally won a championship again, and on my BIRTHDAY last Monday at that, I aint gonna let nothing worry me no more!

I think of you every day and I will always pray for you and your family every day!

May your burdens be lessened, may your yoke lighten and may His love fill your heart always!

YBIC,

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023