Steph,

Back off (said in a nice tone). He's going thru a very tough period in the post Tx era. For most of us the 2 to 3 weeks post Tx were our worst. I really didn't feel like eating anything until I was swallowing 3600 cals a day of Carnation VHC. After a solid week of that I started to add some mashed potatoes w/ gravy, fruit cocktail, mac n cheese, etc.

Please remember that his taste is nothing like it used to be; his dry mouth is horrendous; he's probably still having a gag reflex when swallowing and he's probably weak as a kitten. His mental state is all confused as well. Not only is he dealing with all of the above he also is dealing with the cancer issues of am I cured; will it come back, will I ever be normal again, etc, etc. His mental plight may even get worse before it gets better as many of us suffer some depression months after Tx ends.

You know it's not like recovering from a bad cold or the flu. Just because Tx ends he won't feel close to normal until many many many months post Tx and he will recover in tiny tiny steps and some recovery moments will go undetected for weeks.

Give him all the room he needs to get thru this. He will finally start trying things and most will be horrible compared to pre Tx but then he will start to settle for things that aren't "bad". He will then eat those things for periods of time clinging to them like a child's security blanket until he finds something else that he can tolerate or even "enjoy". For me this was the most challenging part of the recovery, followed closely by the dry mouth. It wasn't until my 16th month post Tx that I finally became satisfied enough with my recovery in those two areas that I didn't care if they improved any more.

He will find his own way of dealing with his recovery and he will constantly find his was of adapting to how he progresses along the way.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.