OP "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Hi Gabriele - I agree with you this site would have helped me so much last year - better late than never. The flap is from my leg - the scar is about 10 inches long - but the flap shrunk so much following radiotherapy and the front of is is so tight it is so uncomfortable.
This time they will be taking some tissue from near my hip (as that doesn't have hair follicles) and put that under the front (tip) of the tongue flap so I will have more movement etc. Hopefully that will allow me to eat something besides pureed food and also speak clearer. Since the operation my speech isn't as clear as it used to be, which besides being unable to eat much has made everything extremely difficult
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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