Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Brian, Thank you SO much for that new forum. I think there is definitely a need for this, there are many people who come here facing serious long term issues (as well as the short term issues most people face) with these things. As someone with severe dysphagia and who still can't teach a 50 minute class without my voice dying (which is pretty frustrating when you are someone who loved the classroom and worked as a teacher--I now teach online but it's not the same), these issues are huge for me. And I've learned quite a bit along the way too which I hope will help others.
There was one thread in "after treatment issues" when I was talking with a new poster who was using a bougie (as I am trying to learn to do) to prevent strictures. I don't think it was copied in there. If I find it for you can we move it?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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