Ann,
I wish I had some answers for you. My husbands cancer is base of tongue and we have not had the problem your husband has but I know exactly how you feel about noone telling you anything. We are dealing with a pegtube, trach tube, clipped caroid artery, tons of mucus, and breathing difficulty and the only thing they are telling me is everything looks good to the naked eye, come back in a month. This has been going on seems like forever. I feel like my entire life is on hold. I can deal with anything but I just want to know what is happening and what to expect and when. Sorry I didn't mean to ramble but sometimes that helps. Will ad you all to my prayer list.