Hayley, you are a brave girl for one so young and have been thru a lot of pain. You make us proud of someone so young enduring so much and the still smiling. I haven't had a peg yet but might need one soon. I am getting the seed implants in my tongue the 29th and am not really looking forward to it. It will be at least 3 days lost while out of it. I wish you luck and hope the next round of treatments make you kick this stuff..

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here