OP  Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | I'm about 10 weeks out from the end of my treatment...got a little taste, toothpaste, some soups etc. Have made friends with my water bottle..BUT, I wake up three or four times a night with my mouth nearly dried shut. I'll have to sit up and take two or three drinks of water and let them sit in my mouth to kind of get things back to normal. Then I can go back to sleep and wake up a do it again. If this is fairly normal...and I assume it is...about how long on average will it last. Kinda ruins the sleep cycle.
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
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