Just touching base on this. I had MRND, bilateral, last April. Jugular, SCM, and SAN all preserved, but have had the usual numbness and stiffness, exacerbated by the radiation for sure.

Over the past little bit, the shoulder neck stiffness and discomfort has appeared to get worse, as the numbness has worn off. Still some numbness, but mostly tightness and some discomfort. I have just had follow ups with my RO, Surgeon and MO, so all is fine from a disease standpoint, but now the nerves in the neck are starting to fire again.

Anyone else experience this? If so, any tips, ideas?

Thanks!