Virginia:

Welcome! Your mom has gone thru 2 weeks and unfortunately the next few will be hard. Ask her oncologist about getting a prescription for Magic Mouthwash. It will help her by numbing her mouth so its not so sore. Also ask for pain patches. Fentanyal is what I used. It is changed every 72 hours and will provide her with constant releif from pain. She needs to keep her calories and water intake up or she will have a hard time of it. She should be using ensure, boost or one of the carnation high calorie drinks to help keep the calories high. If she has a PEG tube, it makes things easier and then she should be using some prescription hi calorie liquid.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile