Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | John,
I didn't have the Peg but this is what I wrote when I was 4 mos out of Tx. maybe it will help. Hang in there it will and does get much much much better but it will take many many months of gradual improvements of which I am still joyfully experiencing.
Here's my 4 month Post Tx post:
Today marks the end of the 4th month after completing my Tx and I thought it would be useful to others to post my progress.
Taste-I have almost all my taste back. I would rate it 9 out of 10.
Hair on the back of my head-Beginning to grow back.
Weight-Lost 35 pounds and have regained 5. Not sure I want much more back.
High frequency hearing loss-Was tested at Moffitt and they confirmed permanent HF hearing loss caused by Cisplatin. MO wasn't so sure and said to wait. Either I am getting use to it or it has slightly improved.
Mental capacity-Fully recovered or I'm worse off than I think. LOL
Physical-Muscle strength 7 out of my 10. Haven't exercised like I use to due to dry mouth.
Stamina-Am able to almost work as much as I use to. Work 9am to 7:30pm. Use to work till 9pm but I am pretty tired by 7:30. Can't keep my eyes open by 10 to 11pm.
Sex drive-Lost it during the intense time of Tx but it back to normal, thank whoever !
Turkey chin-Gobble, gobble, still have it.
Dry mouth-This has been the worst side effect to deal with by far. Not in pain but in affecting quality of life. Just in the last 2 weeks I have noticed a slight change for the better. It's hard to describe but it has improved. I would rate this 9 out of 10 being the worst.
All the other side effects I was dealing with at the end of Tx went away around the 3rd week post TX. Those being: nausea, throat pain, constipation, and maybe a few that I can't even remember now.
All in all I am very pleased with my progress especially considering the way I felt at the end of my Tx and I hope that others who are currently in or recently completed Tx will find this useful.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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