 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Liz, I had 5 different Tx protocols from 5 different cancer docs before settling on Moffitt. Three of the 5 wanted ND before anything else, one didn't mention anything but surgery and Moffitt said no ND before chemo/rad but they would decide after chemo/rad if I needed a ND. They told me my nodes we small and the rad should kill the cancer and there was no need to do the surgery first as it would just postpone the killing Tx. There has also been some research indicating that different Tx protocols MAY apply to HPV+ SCC including foregoing ND in some cases. I did not see that Mary was tested for HPV but reading her signature it seems more likely than not to be the cause.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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