Adelle

YUp I have a neuroma and trimangenial neuralgia..but due to location they are trying to treat with medication instead of surgery ! But when they were 1st trying to diag they had me thinkin I had a tumor in the jaw.

Right now I am on Topmax & Trileptal. They use things like neurotin , amitryptlyn, and even methadone as well as other things. Methadone is one of the last resort meds. I hear Neurotin stinks..I tried amitryptlyn ..that didnt work for me . these meds I dunno if they work yet I am not at my Max doses yet .

But If the remove the Nerve bundle or even the trimengenial nerve ..it could cause facial paralysis and I am not ready for that . So I am trying this route 1st. There are days it is quite painful.

If you have any specific questions please feel free to ask and I will try to answer

Shar