DonnaJean,

My original diagnosis was SCC of the left tonsil with neck mets. Once I found OCF board I called (after treatment was through) and asked what stage I had. They said 2, but from what I have read they were wrong from the beginning. (when I started with the current docs, needless to say I was a 4)

After radiation, I had both my ENT and my oncologist pat me on the head and tell me I was going to be just fine. (There are more details about my original treatment under the survivor stories.) No one ever mentioned the true statistics to me.

And; I need to clarify my tumor statement (with good news) They had shrunk 50% in 3 weeks. Then they shrunk more the next 3 weeks. That put them at 25% of their original size. Those bad boys are just fading into the sunset. Can't say I'll miss them.

You just keep up being the positive force for your husband that you are. Although it's scary to learn so much, it also makes you the best thing that could happen to him. You know what to expect, and what to ask, and when something just isn't right...

Trust your instincts...
Dinah