 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Pat,
As you can see I also had cisplatin and I have suffered permanent high frequency hearing loss in both ears. I was tested and Dx by Moffitt, the same entity that treated me for cancer.
My hearing loss does affect me every day but it is not bad eneough at this point to bother with hearing aids. I was also not told that it will not get worse over time due to Cisplatin but I assume normal aging will take care of that and then I will consider aids.
The docs at the hearing center ( Moffitt) all said my damage is permanent and irreversable BUT my MO ( Moffitt) says that may not be so and to wait and see so we'll wait and see but I can't see any improvement yet.
My MO also told me that he would have switched me to Carboplatin if he had known I was experiencing ringing in my ears. Unfortunately I didn't realize what I was experiencing was ringing in my ears. To me it felt more like one ear going silent for a few seconds. I guess I'll know next time!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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