 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Barb,
They just won't let us have one peaceful minute. I've have 3 post Tx scans and each time they told me "congratulations, everything is fine....but....". I know that the best I can expect is a perfect scan (whatever that this) and that can only last until the next scan but I hate that word BUT or IT CAN'T BE EXCLUDED.
Also, I was told to try to eat as much "regular" food as I could post Tx for my swallowing and I did but I also drank 6 cans of VHC everyday for about 2 months. Now my docs tell me getting that much protein a day was good for me during that period of time. I just wonder if anyone out there really knows what we should specifically do?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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