Hi Everyone, I saw the Chief of Staff again at HUP (Hosp. of University of Penn) Wed. and for the second time he told me they would be taking out my voice box and esophagus. This is before the results of th biopsy the Gastrologist had taken that AM.
The week before the Chief of Staff had taken 4 biopsies from esophyagus that showed cancer.
I haven't had a biospy of voice box, Pet scan, and still have 2 Drs. and speech therapist to see this Monday, so don't know why he's in such a hurry to take it out. He just said something ,like "they are all in there together".
I don't know how or am afraid to talk to Dr. I'm working on getting up the nerve to ask quality of live issues with my 2 new Drs. Making a total of 4 but expect they will follow the direction the Chief of staff points them.
If I have a choice I would much rather be able to talk then eat. I know a feeding tube isn't great but I'd much rather be rid of the esophagus with cancer and keep my voice box. I've not had a decent meal in 5yrs. due to swallowing problems so pretty much have to force feed myself which is no fun.
Wonder if anyone has any thoughts or ideas on the predictament I find myself in.
Luck and Best wished to all of you in this journey we find ourselves.