"Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Hi Jordan,
Jack had the same problem after treatment ended. Yes it does get better, the sores heal, and now he's able to eat in just about the same timeframes as I am. His eating is pretty close to normal.
It's all about the calories at the point you are at. Get them any way you can. As long as you can maintain weight they can remove the tube. Gaining it back may take longer so don't worry about that. You can blend up the tube feeding formula with ice creams, chocolate, or make up smoothies with protein mix. If soft foods are easier right now, so what, it's calories.
Jack went on a schedule of small frequent eating attempts based on a total number of calories each day. That spread it out so he didn't get as full or as tired. Remember you are building the muscles back and chewing does that, but you need to think of it as exercise where muscles fatigue as they are used.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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