Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi Rick,
My story is very similar to yours some of which we have discussed in personl emails before. I had a diagnosis of scc of the lateral border of the tongue from an incisional biopsy done in my office. I went directly to the chief of head and neck surgery at a local CCC. He performed a partial glossectomy and modified neck resection with 30 clear lymph nodes. NO rads, NO chemo. This was done this past April. I have seen him 4 times since and each time the next appointment is scheduled further apart.
I felt that his exams were superficial and on my own I saw a local ENT who I am friendly with. I subsquently had a laryngoscopy and endoscopy done and all is clear. I asked him about a pet scan and/or any other follow-up that he suggested and there is none. He wants to see me yearly and I will continue seeing the surgeon.
Because of my unique situation being a dentist, I can have a ViziLite exam whenever I want and my partners and hygientists check the areas that I cannot check myself.
Good luck and glad to hear that you are feeling better about this. I personnally have no idea when and if my own paranoia will go away, despite all the checking.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
|